Julia and I went to Dr Br in Kansas City on Tuesday.
I will try to wrap my brain around what he said
Basically we are going to go on with the aids drug we are using plus the other stuff I am on and adding supplements to this.
He has been doing a lot of research and has found great information about the supplements he thinks will help in the fight against the xmrv virus. After two months we will see how things are going as in blood test etc, then they may add the other aids drug back. (the yucky one)
We felt very confident in all he had been studying and he is on top of all the different researches as he has been an infectious disease doctor for a very long time. He said this virus is a retro virus as aids that is why he is treating it as he would aids patients.
I will stay on the antibiotics for the lyme.
He also has found a new malaria drug is now available in the US for the babesia. I have been trying to find a pharmacy that has that one, so far no luck. I was excited to hear about it as it is only a three day treatment. 4 pills a day for three days. So then maybe I can go off the malarone that has been bothering my stomach.
So that is about all we know for now. It is a lot to keep straight and I am very thankful Julia can go along and listen and keep it all straight for me. After about two sentences about this cell and that cell I am lost!
He said all the symtoms from the drugs are very normal and most patients have some type of symtoms, so I guess I am normal after all!
A friend sent me this quote. I find it is perfect! Some days the fight gets so hard but I know God is in control!
We don’t live according to our own plans. We live by God’s plan. And as the church chimes playing “God will take care of you” told me, He will always take care of us. Maybe not by shielding us from evil, but by giving us the courage to face it.
